If you’re ever in Seattle with leukemia about to start a bone marrow transplant the next day… we highly recommend you go ahead and catch a fish at Pike’s Place.
It’s been three years today since I got the call from my sister. Through the tears and the gasps there was something about “blood test” and “they don’t know” and then the word “cancer” followed by the word “leukemia.” It was the most horrific moment in either of our lives. Me getting that news… and her, having to share it with her baby brother.
It’s a moment that replays daily in my head like it happened yesterday. The instant nausea, the concern and the start of one incredible journey. But just like most journeys, it takes a bit of time and distance to fully appreciate how far you’ve come. The good news is that we’ve been through hell and back… and Lea is recently and currently cancer free! She’s survived not only leukemia, but the misery of numerous demoralizing failed treatments, thousands and thousands of invasive tests.. and that most amazing “if it doesn’t kill you” experience of a bone marrow transplant.
Cancer isn’t as glamourous as you might think…
Her hair is growing back slowly, she goes to the doctor only 3-4 days a week now and her journey continues. Today marks a very special day for all of us, because it’s another milestone: the start of her first complete year without leukemia since diagnosis!
Lea, on the left looks beautiful sans hair. I shaved my head in solidarity… though most people are quick to note that there wasn’t much to take off.
Congratulations to you, Billy and all of those who love you and have supported you along the way!!! You’re doing GREAT!! Go celebrate today!
Lea - Brian Gregory Wedge,
You amaze me. Thank you for being my very first best friend and a best friend in life now. When we were little, it felt like we were a team, you and I, playing pond hockey across the street, making you candy soup in my “kitchen”, playing so many games and most importantly sharing my life with you. I can not imagine a day in my life when I do not talk to you. It would be like a part of me is missing.
I certainly know this “journey” has aged us all. I do not wish cancer, leukemia, and transplant on anyone or any family. It is not a “gift”. There are many triumphs and discoveries along the way and I am so lucky and grateful to have shared/and share them with you and Christine. (Of course you too mother!)
I love you guys-
me
Christine Malia - I can’t believe it’s been so long..these photos were great to see all together, Bri.
Lea,
I am absolutely honored to be able to share this journey with you and to be part of the family. I’m humbled by the grace, strength, and good humor with which you handle all of the challenges that come on a day-to-day basis. You’re an amazing sister- thanks for being you, and for being such a big part in Brian’s becoming the person that he is!
Love!
Kent Mack - Thanks for sharing a little slice of the incredible journey with us. You’re amazing.
Jean - Hi Brian and Lea–
I’m Jean from the National Bone Marrow Transplant Link, an organization which helps BMT patients and families cope with the challenges of transplant by providing vital information and personalized support services. We found your blog through Google blog alerts. My daughter had her tranplant at the Hutch 6 years ago, so the photos are very familiar!
I wanted to let Lea know that we have a “Celebrating 2nd Birthdays program” (your transplant anniversary is your “2nd Birthday”) to honor and celebrate BMT survivors. Also, if you send me a mailing address, I’d like to you both a “Help & Hope” bracelet which recognizes the role of BMT caregivers.
All the best!
Jean
jeanjones@nbmtlink.org http://www.nbmtlink.org
Kerry (Villandry) Moschella - Lea:
Congratulations. I wish you continued health and happiness.
Brian: I check in often to your site. You are so gifted. Keep up the good work.
– Kerry